List of Rare Diseases
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National Organization for Rare Disorders
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National Organization for Rare Disorders (NORD)
Voluntary health organizations dedicated to providing information on the prevention, treatment, and cure of rare "orphan diseases.
http://www.rarediseases.org/
Home - NORD Rare Disease Support Community - Inspire
Inspire connects patients, families, friends, caregivers and health ... Rare Disease Support Community is sponsored by the National Organization for Rare ...
http://www.inspire.com/groups/rare-disease/
NORD - National Organization for Rare Disorders, Inc.
National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, ...
http://www.rarediseases.org/login_form
Cephalon | National Organization for Rare Diseases Partnership
National Organization for Rare Diseases Partnership. Community Volunteers in Medicine ... founded, thousands of patients with rare diseases now have ...
http://www.cephalon.com/media/featured-profiles/programs/national-organization-for-rare-diseases-partnership
NIH Office of Rare Diseases
The Office of Rare Diseases (ORD) at the National Institutes of Health (NIH) ... National Organization for Rare Disorders (NORD) More... Research & Clinical Trials ...
http://rarediseases.info.nih.gov/
Rare Disease Search Engine.
Adult Polyglucosan Body Disease. • Agenesis of Corpus Callosum. • Ahumada-Del Castillo Syndrome ... Fonts, Images & Sounds, Rare Disease Search Engine, Tech ...
http://www.raredisease.org/
Rare disease - Wikipedia, the free encyclopedia
National Organization for Rare Disorders. Database of rare diseases at Orphanet ... European Organization for Rare Diseases. Orphanet Journal of Rare Diseases ...
http://en.wikipedia.org/wiki/Rare_diseases
The National Organization Against Rare Cancers: About NOARC
The vision of The National Organization Against Rare Cancers is to mobilize the ... a medical diagnosis of an extraordinarily rare disease which, if left untreated, ...
http://www.curerarecancer.org/about_noarc.htm
The National Organization Against Rare Cancers: Public Policy Initiatives
The National Organization. Against Rare Cancers. Providing Hope... Taking Action... state" of post-marketing confirmatory trials in ultra-rare disease settings. ...
http://curerarecancer.org/legislative.htm
GuideStar - Philanthropy Fund of America - Search Results - Report Page ...
... in 10 Americans who have rare diseases with programs of advocacy, education, ... founder and President of the National Organization for Rare Disorders (NORD), a ...
http://www.guidestar.org/pqShowGsReport.do?partner=pfa&ein=13-3223946
Other Sources of Rare Disease/Orphan Product Information
For example, the National Organization for Rare Disorders (NORD), which is an ... The National Organization for Rare Disorders is the federation of voluntary ...
http://www.fda.gov/orphan/rdid/
Cystinosis Foundation: NORD
National Organization for Rare Diseases ... The National Organizaiton for Rare Disorders (NORD) is the administrator of the program. ...
http://www.cystinosisfoundation.org/nord.html