National Organization for Rare Disorders (NORD)
Voluntary health organizations dedicated to providing information on the prevention, treatment, and cure of rare "orphan diseases.
http://www.rarediseases.org/
Canadian Organization for Rare Disorders
... for organizations representing all those with rare disorders. ... on Rare Disorders in Canada ... Canadians with rare disorders need timely access to ...
http://raredisorders.ca/
Open Directory - Health: Conditions and Diseases: Rare Disorders
National Organization for Rare Disorders, Inc. ... CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. ...
http://www.dmoz.org/Health/Conditions_and_Diseases/Rare_Disorders/
How to Rare Skin Disorders | eHow.com
How to article - rare skin disorders. Some rare skin disorders cause little more than aggravating cosmetic symptoms. Others are more dangerous and can be life...
http://www.ehow.com/how_4777727_rare-skin-disorders.html
Rare Disorders
A rare disorder is usually defined as one that is suffered by 200,000 or less ... Here at rare-disorders.com, we aim to help you find the information you are ...
http://www.rare-disorders.com/
Sloan-Kettering - Rare Hematologic Disorders
This section includes descriptions of several rare hematologic malignancies, including the following: lymphoproliferative disorders (diseases of white blood cells ...
http://www.mskcc.org/mskcc/html/5432.cfm
The DRM WebWatcher: Rare Disorders
A Disability Resources Monthly guide to the best online resources about rare disorders. ... Parents of children with rare disorders who are looking for other ...
http://www.disabilityresources.org/RARE.html
CDC Features - Care at Comprehensive Treatment Centers Can ...
... and scientists who work on rare disorders such as hemophilia is lack of access to uniform data. ... well-being of people with rare chronic genetic disorders. ...
http://www.cdc.gov/Features/ComprehensiveCare/
Clearwater,FL Chromosome 9 Ring; Chromosome 9 Ring is a rare ...
Morton Plant Mease Health, Clearwater and Tampa Bay area, Florida - Chromosome 9 Ring; Chromosome 9 Ring is a rare disorder in which there is loss (deletion) of ...
http://www.mpmhealth.com/118289.cfm
RARE SKIN DISORDERS
There are many rare skin disorders that might affect an individual at many ... Most of these rare skin disorders are treatable and can be brought under control ...
http://rareskindisorders.net/
RARE DISEASE DAY
ization for Rare Disorders (CORD). " When you consider. them ... awareness of the rare disorders. and diseases and, more import- ant, to urge international and ...
http://www.raredisorders.ca/documents/NP2008Feb288JVemail.pdf
Rare coagulation disorders.
Rare coagulation disorders. Peyvandi F, Mannucci PM. ... Iran where consanguineous marriages are frequent these disorders are less rare. ...
http://www.ncbi.nlm.nih.gov/pubmed/10544899
Charity Navigator Rating - National Organization for Rare ...
Charity Navigator, America's largest independent charity evaluator, provides ... The National Organization for Rare Disorders (NORD) is a unique federation of ...
http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=6741
YouTube - raredisorders's Channel
Share your videos with friends, family, and the world ... The National Organization for Rare Disorders (NORD) provides advocacy, education, ...
http://www.youtube.com/user/raredisorders
Skin Disorders
Links to information and resources for rare disorders, diseases, and conditions affecting the skin. ... pigmentosum is a rare genetic defect in ultraviolet ...
http://rarediseases.about.com/cs/skindisorders/
Genetic Conditions / Rare Conditions Information Site
Information on genetic conditions and birth defects for professionals, educators, ... Brain Conditions / Disorders. Branchio-Oto-Renal (BOR) syndrome. Canavan ...
http://www.kumc.edu/gec/support/
Rare Neural Disorders - LIVESTRONG.COM
Rare Neural Disorders. Lifestyle, fitness & health information about Rare Neural ... National Organization for Rare Disorders (NORD) ...
http://www.livestrong.com/rare-neural-disorders/
Marlene G. Krammer Evaluation and Assessment January 14, 2003 ...
treatment and cure of rare disorders through programs of education, advocacy, research and ... It is estim ated that approximately 6,000 rare disorders collectively ...
http://rarediseases.org/pdf/Eval_Final_Paper.pdf
Support centre for rare disorders needed
140,000 have rare disorders... Free GP care for all over 70s abolished... Many disorders are so rare that the development of therapies is not even funded. ...
http://www.irishhealth.com/article.html?level=4&id=13818
National Organization for Rare Disorders, Inc. (NORD) | Facebook
Welcome to the official Facebook Page of National Organization for Rare Disorders, Inc. (NORD). Get exclusive content and interact with National Organization for ...
http://www.facebook.com/pages/National-Organization-for-Rare-Disorders-Inc-NORD/47589773461?sid=58399031c8505aba39b49bb6e08ae727&ref=s